Painful Endometrial Biopsy 6 Months After Laparoscopic Surgery

Painful Endometrial Biopsy 6 Months After Laparoscopic Surgery

If you follow me on Instagram, you might have noted that I had a rough day yesterday.

I hate admitting that – because I’m not looking for a pity party.

But I do want to share some of my recent experiences trying to find a solution to my endometriosis pain, so I can get back to living a relatively normal life.

I don’t have a lot of energy for videos or blogging after the latest experience, so this will be as brief as possible, and I’ll share more with you later.

Please comment if you have any specific questions about my overall experience that I can share with you.

If you are an Endo Sister, please don’t hesitate to share your story. I’m with you – stay strong.

Clinical Trial for Endometriosis

Several weeks ago I started a clinical trial for endometriosis treatment – although I’m still in the testing and qualifying stages, waiting to move on to take the real hormone control pill (or the sugar pill – if I’m unlucky).

I did the laparoscopic surgery to burn off some of the endometriosis just over 6 months ago and still feel sore from that.

After surgery, because they couldn’t get everything that was in my Fallopian tubes, my doctor gave me a Lupron injection to try to shrink it and reduce symptoms – which completely destroyed my ability to function.

Now I’m doing a clinical trial where at least I’ll be paid to be a guinea pig, which sounds like a much better idea.

I’ve been taking a prep-hormone dose to get me ready for whatever it is they might or might not use to treat me.

I’ve also been filling out an electronic diary every day, giving a scale of my pelvic pain symptoms from 1 to 10.

Most days I’m finding are an 8 or 9.

Although I’ve had what I thought were a few 10s – the scale seems to have adjusted to a higher level of pain so I probably should have saved those 10s for what was to come.

More details of the test, specifically who’s administering, what I’m taking, and the expected side effects are confidential.

Getting a Biopsy 6 Months After Surgery

When I first went in, the extremely nice ObGyn doctor who is taking on my case gave me an extremely painful biopsy, to the point that I almost kicked him in the face and had to brace my body from trying to fly off the table – all while being held down and comforted by two nurses.

My screams could be heard throughout the office – all the nurses and aides smiled with sympathy as I left.

The doctor even gave me a hug – I think he felt bad for hurting me, but it was awkward.

I had to go straight from the biopsy to an ultrasound (bad sequence), and have to admit I was bawling full on ugly cry face by the time I finished that day.

I did get paid about $300 for that visit, so that’s something – and I am also hopeful that they are going to take a look at the genetics of my endometriosis to learn more about this thing.

Something Went Wrong

Somehow – probably my convulsing – the doctor did not get enough of a sample for the lab – or there was something wrong with the sample – I’m not sure.

This meant scheduling an appointment for a new biopsy.

This made me not a happy camper.

I went in last week prepped to do the biopsy, and even took ibuprofen that morning as suggested.

I cried in the car before going in.

But when I saw the doctor he had changed his mind.

Because I had never had a full-term pregnancy or given birth, he felt my cervix was way too tight and he didn’t want to keep causing me pain.

I was scheduled for a new biopsy with a different doctor, a female this time, who would be able to do a block – injecting me with a strong painkiller.

I have to admit I did feel so much relief at the idea of a block before getting the biopsy – I felt that was appropriate for the level of pain.

But the anticipation was still a nightmare after what I had already gone through.

When I saw the doctor yesterday for the latest attempt at a biopsy of my endometrial lining, she assured me she would inject lidocaine so that I’d barely feel anything.

I had also taken 400 mg of ibuprofen an hour before.

Despite these precautions, the pain was insane when she went in for the sample.

I involuntary convulsed and screamed, I told her to GET OUT and that the cramping was far too unbearable.

If it hadn’t stopped within 10 seconds of when she started, I think I would have fainted.

The doctor said it was very unusual for someone to experience so much pain with a biopsy. She does them every day, and never sees this reaction.

But I’ve heard stories of others with endometriosis or cancer or pelvic inflammatory disease, all having similar circumstances, especially if they haven’t given birth.

After this experience, I went home and could not stop crying and shaking for about an hour.

I took more ibuprofen, and continued to cramp and bleed all night.

My stomach swelled out by about 4 inches and was very uncomfortable, but it seems to be a bit better now.

I’m just super fatigued and now feeling drained from the experience.

I don’t know that my body can handle another biopsy at this point.

I just have to wait and see how this thing plays out now.

4 Replies on “Painful Endometrial Biopsy 6 Months After Laparoscopic Surgery

    1. I don’t think that was a concern, but I had already had my limit of 800 mg allowed by my doctor at the time of the biopsy. I think if I even have to do something like that again I have to make them wait after injecting the lydocaine and test things out. That’s what I’m learning from others with a similar sensitivity.

  1. Hi Jaime,

    I am so sorry you were going through all this. I knew you were having a hard time but didn’t know it was so horrible!!

    I don’t want to be another person with suggestions but I have had many, many health issues, auto-immune problems etc. etc. and I have learned that many problems such as endometriosis can be caused by estrogen dominance. I don’t have endometriosis but I have large fibroids. I also had many other problems that are caused by having too much estrogen in relation to progesterone. When I take progesterone it treats many serious and debilitating problems for me include night sweats and terrible itching caused in the nerves. It also makes the fibroids shrink and gets rid of the symptoms from them, helps with muscle pain, breast tenderness and more. I just use a natural (bioidentical) progeserone cream. That is all I need to combat all these problems. Just make sure you use natural progesterone not the man made chemical version.

    I started with Life Flo brand ProgestaCare Natural Progesterone Body Cream and used it for several years. Now I use Smoky Mountain Naturals brand Advanced Formula Progesto-Life. I switched when Amazon stopped shipping the first brand and I actually like the new kind better. It is lighter and absorbs faster.

    I hope you will look up endometriosis and estrogen dominance. I truly believe many women are suffering from this problem and adding needed progesterone to balance the estrogen (which we get from plastics, birth control etc.) can be dramatically effective.

    The trick to make this work is using a very high dose however. Using just a small amount can exacerbate symptoms (I have read). I took the advice I read to start at a high dose and never had any bad symptoms at all. I get only relief. I used 5-6 pumps (they are measured) twice per day to start and now only need 1 pump in the morning and about 4 before bed.

    I know unsolicited advice gets REALLY annoying. Sorry. I can’t pass up sharing this life changing info though. I hope you get better one way or the other!

    Jessica

    1. Thank you so much for your suggestions. I know what you mean about not wanting to be another person with suggestions – I do get a lot of them. I consider the ones from people I trust, like you, at the top of my list so I’m adding it. Unfortunately, right now I’m on assistance just to get rent paid while trying to cover surgeries and treatment for my unending pain so I can’t spend money on these other great solutions just to try them, but it’s part of my overall plan to help me find relief. Thank you again for all the support. You are amazing with what you go through, too.

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